3Įxcessive daytime sleepiness (EDS) and cataplexy are considered the cardinal symptoms of narcolepsy. 4, 5 Such a delay may have a profound impact because pediatric narcolepsy is associated with impaired academic performance and reduction in social and participatory activities. 1– 3 However, diagnosis is often delayed due to lack of symptom recognition. Narcolepsy symptom onset generally occurs during childhood or adolescence. Two ESS-CHAD versions were proposed: one with a 1-month recall period, for general use, and the other with a recall period of “since your last study visit,” for research, which could be shorter or longer than 1 month (as short as 1 week). Modifications were made to ESS-CHAD for child-friendly wording and to ensure that items reflect activities (eating, watching TV/video) and environments (school, bus/car transport) in which children are likely to participate. Cataplexy diary modifications included changes in definitions and examples of cataplexy, using child-friendly terminology, adding a quantitative question to determine daily frequency, and standardizing the questionnaire for evening administration with self-completion by the child. ![]() Similarities and differences were noted between narcolepsy concepts described by children and their parents/caregivers, suggesting some different but complementary perspectives parents may not recognize cataplexy symptoms/triggers as well as children, but parents have greater recognition of the circumstances of falling asleep.
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |